Our People
Young Epilepsy is the coming together of children and young people with epilepsy, with an expert team of researchers, product developers, service providers, policy makers, campaigners, and fundraisers, plus an international network of partners, to create possibilities.
A group of people, with a wide range of experiences, perspectives, skills, and expertise, with one shared purpose.
together we create possible
Executive Team
Our Executive Team is responsible for providing strategic and operational leadership within the charity and is led by the Chief Executive.
Board of Trustees
The Board of Trustees governs the affairs of the charity, ensuring that we are well run and deliver charitable outcomes that benefit children and young people with epilepsy. The Board is supported by six sub-committees:
- Finance, Audit and Risk Committee
- Fundraising and Communications Committee
- Health Services Committee
- Remuneration Committee
- Nominations Committee
- Education Governing Body.
Education Governing Body
The Education Governing Body oversees the provision of education (including residential) services at St Piers School and College. Four of the Governors, including the Chair of the EGB, are also Trustees.
Young people are at the centre of everything we do, and we are striving to ensure that every young person with epilepsy has the opportunity to be heard and their condition better understood.
Young Trustees
Our Young Trustees are the link between our Young Reps and Young Epilepsy’s Board of Trustees (the Board).
Young Trustees are not formal voting members of the Board but attend Board meetings in an advisory role to ensure that the needs of Young Epilepsy’s beneficiaries are at the forefront of the Board’s decision making.
Youth Voice Network
The Youth Voice Network is a group of over 180 young people with epilepsy between the ages of 13-25 from across to UK, who help to ensure that young people are at the centre of everything we do at Young Epilepsy. The Youth Voice Network helps shape the direction of the charity and ensure that we understand the experiences of young people and work to support them as well as campaigning for wider change.